Jobilyn Balagso, from the village of Hilltop Pakak, was born at Abundant Grace of God on November 29, 2009. She was born with both of her legs severely hyperflexed against her chest. When we took her to the local government hospital they took x-rays that showed she had almost non-existent kneecaps. Then they put casts on her legs so that they could be straightened. Other than that, they not give any advice or even a diagnosis of her condition.
I had not seen Jobilyn very often since her birth so this last December when I saw her and her mom at church I was taken aback by the worsening of her condition. She was over a year old but was still not even able to hold her head up let alone sit up. I suggested going to a local rehabilitation centre called Lin-Awa which is run by the Catholic church to see if anything could be done to help.
The physiotherapists at Lin-Awa had never seen anything like Jobilyn’s condition before and referred us to a specialist in Tuguegarao City (2 hours away). The Specialist in Tuguegarao didn’t know what to do with Jobilyn either and referred us to a Genetic Pediatrician in Manila.
Jobilyn’s family are sustenance-based rice farmers with no extra money for even a bus trip to Manila let alone specialist check-ups.
This past week we were finally able to spare the funds to send Jobilyn to Manila for specialist check-ups at Philippine General Hospital. Our friend Richel Halili accompanied Jobilyn and her mom Luk-ay and dad Benjie to Manila by bus. Our friend Naomi Hamilton has generously let them stay at her ministry house (Safe Refuge) while they undergo their check-ups.
After check-ups with over half a dozen doctors (Neurologists, Orthopedics, Genetic Pediatricians, Surgeons) numerous blood tests, x-rays and even a CT scan her condition is still not clear. The doctors are requesting that Jobilyn undergo an MRI in order for a conclusive diagnosis to be made and a physical therapy routine established.
The problem is that we are now out of money. We have come so far and had so many doctors attending to Jobilyn that it seems such a shame not to be able to finish her treatment.
If any of you reading this note feel moved to help Jobilyn finish her check-ups in Manila please go the donate section of this blog. You can give through paypal with a note designating the money for Jobilyn. We will get all of the money to them immediately.